This is what the asshole of a doctor told me. I finally had an appointment for the Ortho (bone) doctor for my oldest son and I sat waiting to be seen (with an appointment) for almost 2 hours with both of my children....my son with the possible CP at 3 years old and my 19 month old younger son. Needless to say, I was stressed out with my two boys who, understandably, had lost all patience. I was yelled at by security for knocking on the door after the receptionist told me to to see were the doctor was and then after I started yelling back I finally got put in a room to see the doctor.
I had prepared to see this doctor my whole life (well, at least my son's whole life). I had a note pad in the diaper bag with the questions I was going to ask him but I had already memorized it. They directed me to another room where the doctor was. He looked at my son and then asked me to explain in my own words what was wrong with him. I went through a brief history and ended by telling him that I thought he might have CP because of his walking problems. He then proceeded to look more at my son, then tried to spread his legs. My son whimpered and he told me that my son's pelvis was really tight....something that I already knew. Then he sat back in his chair and asked me had he had any x-rays. I told him about the x-rays done on this hip. He looks it up and says that his hip isn't dislocated...again, something that I was already told and knew. He finally sat back again in to his chair and closed his eyes. I thought he was going to drop a bomb on me so I was ready. He did drop a bomb but not what I was expecting. He then tells me " Well he's disabled and he is never going to be normal." I told him that I knew that but that my son has problems walking and falls a lot. That I wanted to know if there was something that can be done to help him with that. He says "Well he doesn't need surgery but there is nothing that you can do for him that can help. That's just the way he is. He's not perfect." Again, I attempted to try and show him something that he was missing. I asked him about support for his walking, like leg braces...like the one's that go from the ankle to his knee....that I wasn't sure if he was in pain or not and that I knew that he's not going to be "perfect" but that I just want to know about something that can help him be more comfortable. He shakes his head and tells me "I don't see how that is going to make any difference." I was furious. He turns around in his chair and tells the nurse to make a referral to a Orthopedic Pediatric doctor or something like that for Children's Hospital. I then ask for a referral for a neurologist and he tells me "Oh they do about the same thing". I knew this doctor was not tying to dismiss me so I started to ask him the questions that were in my notebook. I asked him "Is there something that I can do for him now to help him while waiting for another specialist?" This asshole turns around and tells me " You just continue to love him, take care of him and feed him...." I didn't hear the rest. Then he asks me the most stupidest question "Is there a reason why he wears that around?" I looked what he was talking about and found out he was referring to his diaper. I said "That is a diaper. He wears it because he isn't potty trained yet. It's hard to potty train him" The he says" Ohh...well you continue to potty train him."
Thanks for nothing asshole.
Monday, December 8, 2008
My son has Cerebral palsy..."There is nothing that you can do for him that will help"
Labels:
baby,
cerebral palsy,
children with speical needs,
cp,
disabilites,
disabled,
disabled children,
doctors,
God,
happiness,
preemie,
pregnancy,
SAHM
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