Sometimes I really hate the holidays. I'm not a Scrooge by birth, but with people constantly coming over I feel the urge to have my little apartment looking like the holiday spirit. Only thing is my holiday spirit is only worth $12. Why buy candles for $5 when I can get them 2 for 99 cents? Either way, no matter how many times I clean my house, it looks like a tornado in the middle of Manhattan. Nothing ever looks clean enough and for me to get my SAHM badge of honor, this little apartment in the suburbs has to look purfect! Oh, and I hate cats.
It finally snowed in Quartz Hill, CA and my kids hated it. Along with my husband, I took my 2 kids (ages 1 and 3) out 2 days ago to see the snow for the first times in their life. My 1 year old looked at the snow like another opportunity to eat something off of the ground while my 3 year old started to become agitated at the snowflakes that kept touching his face. Everyone knows that the only way to get rid of snowflakes is to scream so that's exactly what he did. He was always a good boy. After I was done hearing his alarm, I reluctantly took him inside. I guess we are going to have to put a hold on bringing Frosty back to life.
So here I am inside of nearly clean apartment waiting for the breadwinner to return home so that I can once again clean what ever dirt and clothing he sheds off as soon as he walks through the door. My kids are in their room playing their favorite screaming game before taking a nap and I'm here typing away, hoping that the time goes by quicker. Santa, all I want for Christmas is the Sandman. He's more useful now a days for this SAHM than you are anymore.
Friday, December 19, 2008
Monday, December 8, 2008
My son has Cerebral palsy..."There is nothing that you can do for him that will help"
This is what the asshole of a doctor told me. I finally had an appointment for the Ortho (bone) doctor for my oldest son and I sat waiting to be seen (with an appointment) for almost 2 hours with both of my children....my son with the possible CP at 3 years old and my 19 month old younger son. Needless to say, I was stressed out with my two boys who, understandably, had lost all patience. I was yelled at by security for knocking on the door after the receptionist told me to to see were the doctor was and then after I started yelling back I finally got put in a room to see the doctor.
I had prepared to see this doctor my whole life (well, at least my son's whole life). I had a note pad in the diaper bag with the questions I was going to ask him but I had already memorized it. They directed me to another room where the doctor was. He looked at my son and then asked me to explain in my own words what was wrong with him. I went through a brief history and ended by telling him that I thought he might have CP because of his walking problems. He then proceeded to look more at my son, then tried to spread his legs. My son whimpered and he told me that my son's pelvis was really tight....something that I already knew. Then he sat back in his chair and asked me had he had any x-rays. I told him about the x-rays done on this hip. He looks it up and says that his hip isn't dislocated...again, something that I was already told and knew. He finally sat back again in to his chair and closed his eyes. I thought he was going to drop a bomb on me so I was ready. He did drop a bomb but not what I was expecting. He then tells me " Well he's disabled and he is never going to be normal." I told him that I knew that but that my son has problems walking and falls a lot. That I wanted to know if there was something that can be done to help him with that. He says "Well he doesn't need surgery but there is nothing that you can do for him that can help. That's just the way he is. He's not perfect." Again, I attempted to try and show him something that he was missing. I asked him about support for his walking, like leg braces...like the one's that go from the ankle to his knee....that I wasn't sure if he was in pain or not and that I knew that he's not going to be "perfect" but that I just want to know about something that can help him be more comfortable. He shakes his head and tells me "I don't see how that is going to make any difference." I was furious. He turns around in his chair and tells the nurse to make a referral to a Orthopedic Pediatric doctor or something like that for Children's Hospital. I then ask for a referral for a neurologist and he tells me "Oh they do about the same thing". I knew this doctor was not tying to dismiss me so I started to ask him the questions that were in my notebook. I asked him "Is there something that I can do for him now to help him while waiting for another specialist?" This asshole turns around and tells me " You just continue to love him, take care of him and feed him...." I didn't hear the rest. Then he asks me the most stupidest question "Is there a reason why he wears that around?" I looked what he was talking about and found out he was referring to his diaper. I said "That is a diaper. He wears it because he isn't potty trained yet. It's hard to potty train him" The he says" Ohh...well you continue to potty train him."
Thanks for nothing asshole.
I had prepared to see this doctor my whole life (well, at least my son's whole life). I had a note pad in the diaper bag with the questions I was going to ask him but I had already memorized it. They directed me to another room where the doctor was. He looked at my son and then asked me to explain in my own words what was wrong with him. I went through a brief history and ended by telling him that I thought he might have CP because of his walking problems. He then proceeded to look more at my son, then tried to spread his legs. My son whimpered and he told me that my son's pelvis was really tight....something that I already knew. Then he sat back in his chair and asked me had he had any x-rays. I told him about the x-rays done on this hip. He looks it up and says that his hip isn't dislocated...again, something that I was already told and knew. He finally sat back again in to his chair and closed his eyes. I thought he was going to drop a bomb on me so I was ready. He did drop a bomb but not what I was expecting. He then tells me " Well he's disabled and he is never going to be normal." I told him that I knew that but that my son has problems walking and falls a lot. That I wanted to know if there was something that can be done to help him with that. He says "Well he doesn't need surgery but there is nothing that you can do for him that can help. That's just the way he is. He's not perfect." Again, I attempted to try and show him something that he was missing. I asked him about support for his walking, like leg braces...like the one's that go from the ankle to his knee....that I wasn't sure if he was in pain or not and that I knew that he's not going to be "perfect" but that I just want to know about something that can help him be more comfortable. He shakes his head and tells me "I don't see how that is going to make any difference." I was furious. He turns around in his chair and tells the nurse to make a referral to a Orthopedic Pediatric doctor or something like that for Children's Hospital. I then ask for a referral for a neurologist and he tells me "Oh they do about the same thing". I knew this doctor was not tying to dismiss me so I started to ask him the questions that were in my notebook. I asked him "Is there something that I can do for him now to help him while waiting for another specialist?" This asshole turns around and tells me " You just continue to love him, take care of him and feed him...." I didn't hear the rest. Then he asks me the most stupidest question "Is there a reason why he wears that around?" I looked what he was talking about and found out he was referring to his diaper. I said "That is a diaper. He wears it because he isn't potty trained yet. It's hard to potty train him" The he says" Ohh...well you continue to potty train him."
Thanks for nothing asshole.
"Your son is extrememly spastic....I think he has Cerebral palsy."
My son is smart. Not in that conventional smart like other parents talk about when talking about their kids but he is very 4bright. No, my son didn't start crawling at 4 months, talking at 5 months, walking at 6 months and eating with a spoon at 9 months. My son is smart for the fact that he has already learned to never give up. He does things at his own time and in his own way. He figures out things at his own pace but understands more than you know. I wouldn't call it normal a bit, but it's normal for him.
For a background, my son was born premature. I had him at 25 weeks. Earlier in the pregnancy (around 15 wks) I fell and it caused my placenta to tear away from the uterine wall. I almost miscarried and was on bed rest. Needless to say, I was happy that I even got that far in my pregnancy. He was born Nov 16, 2005 at 1lb and 6.8 ounces and at 11 in in length. At 20 years old my self I was scared out of my mind. He stayed in the hospital for 5 months, going through 3 surgeries and multiple middle-of-the-night scares. Heck I have been through it all with him...him not breathing, his brain having a bleed, him on life support, his bladder having a hole in it, his heart over circulating blood, him not being able to eat, him being transferred to 3 different hospitals, me pumping for breast milk for 2 and a half months before it dried up....everything....not to mention other things in my not so normal life. Eventually all of that passed and he was finally home at almost 6 months old on April 19th, 2006. He was perfect to me.
At about 8 months I started to noticed that he wasn't crawling and that really bothered me. Of course doctors assured me that he was ok, he would catch up at 2 yrs and that it is normal for a micro-preemies to be behind. In fact he just came home and I would be happy that he hasn't had to go back to the hospital. I accepted that and went on. Finally on October 25th (my birthday) my son started to crawl. He was one month away from being a year old. I figured that he was ok and that he would walk soon.
At 18 months my son couldn't hardly stand up and cried when ever he was made to stand up. He would cry like in pain then fall because he had no balance and this kept up for months. I took my son to the doctors again and once again, they reassured me that nothing was wrong and that he will catch up at 2. I was not buying it his time. Finally at 2 years old he started to walk and by that time with no help of his doctors, I called the school district. They were finally helpful and put him into a 2 hour class once a week for therapy. Only the teachers were obviously not qualified. My son scared them every time he had problems with balance as if they never saw such a child. I was concerned about my son and thought that since these women are professionals, they should have the answers to my questions. I asked one of the teachers "Is is normal for him to sit in that "W" position?" and the teacher told me "Oh, sometimes I sit in that position too!". After that day we never went back. I called the Regional School District again, complaining about the care my son received and requested another therapist. My son was given a in-home Occupational Therapist. She told me to never let him sit that way.
I finally moved....not just because I wanted a bigger place but because I wanted better service. I finally found my son a pediatrician 2 months after moving to LA County from Kern County and I was nervous. She looked at him, had him to walk and talk with her and she finally said what I had wondering all along: "Your son is extremely spastic....I think he has CP." She ordered x-rays and blood tests and finally gave me the referrals that I needed: nutritionist, occupational therapy, speech therapy, physical therapy, and a Ortho doctor to check his bones. I'm finally on the road to my son's recovery. Of course, she's not a specialist and the specialist would have to officially diagnose my son....but now I have a name...and to me that has opened me up to almost every possibility.
For a background, my son was born premature. I had him at 25 weeks. Earlier in the pregnancy (around 15 wks) I fell and it caused my placenta to tear away from the uterine wall. I almost miscarried and was on bed rest. Needless to say, I was happy that I even got that far in my pregnancy. He was born Nov 16, 2005 at 1lb and 6.8 ounces and at 11 in in length. At 20 years old my self I was scared out of my mind. He stayed in the hospital for 5 months, going through 3 surgeries and multiple middle-of-the-night scares. Heck I have been through it all with him...him not breathing, his brain having a bleed, him on life support, his bladder having a hole in it, his heart over circulating blood, him not being able to eat, him being transferred to 3 different hospitals, me pumping for breast milk for 2 and a half months before it dried up....everything....not to mention other things in my not so normal life. Eventually all of that passed and he was finally home at almost 6 months old on April 19th, 2006. He was perfect to me.
At about 8 months I started to noticed that he wasn't crawling and that really bothered me. Of course doctors assured me that he was ok, he would catch up at 2 yrs and that it is normal for a micro-preemies to be behind. In fact he just came home and I would be happy that he hasn't had to go back to the hospital. I accepted that and went on. Finally on October 25th (my birthday) my son started to crawl. He was one month away from being a year old. I figured that he was ok and that he would walk soon.
At 18 months my son couldn't hardly stand up and cried when ever he was made to stand up. He would cry like in pain then fall because he had no balance and this kept up for months. I took my son to the doctors again and once again, they reassured me that nothing was wrong and that he will catch up at 2. I was not buying it his time. Finally at 2 years old he started to walk and by that time with no help of his doctors, I called the school district. They were finally helpful and put him into a 2 hour class once a week for therapy. Only the teachers were obviously not qualified. My son scared them every time he had problems with balance as if they never saw such a child. I was concerned about my son and thought that since these women are professionals, they should have the answers to my questions. I asked one of the teachers "Is is normal for him to sit in that "W" position?" and the teacher told me "Oh, sometimes I sit in that position too!". After that day we never went back. I called the Regional School District again, complaining about the care my son received and requested another therapist. My son was given a in-home Occupational Therapist. She told me to never let him sit that way.
I finally moved....not just because I wanted a bigger place but because I wanted better service. I finally found my son a pediatrician 2 months after moving to LA County from Kern County and I was nervous. She looked at him, had him to walk and talk with her and she finally said what I had wondering all along: "Your son is extremely spastic....I think he has CP." She ordered x-rays and blood tests and finally gave me the referrals that I needed: nutritionist, occupational therapy, speech therapy, physical therapy, and a Ortho doctor to check his bones. I'm finally on the road to my son's recovery. Of course, she's not a specialist and the specialist would have to officially diagnose my son....but now I have a name...and to me that has opened me up to almost every possibility.
I forgot this blog existed
Well now I'm back almost exactly a year later. No radio podcast show....just me.
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